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Showing posts with label living with migraine. Show all posts
Showing posts with label living with migraine. Show all posts

Saturday, May 9, 2020

Chronic Life Silver Linings

So with a neurological disease in the form of chronic migraines
and a disease of the nervous system in the form of fibromyalgia,
Some days I really really struggle...well let me be truthful, most days I struggle.
I TRY to see my body as a magical and intelligent vehicle but often I hate this body of mine...
not for how it looks but for how it feels & makes me struggle & fight just to have a normal day.
I am really struggling still with the fact that I now have two chronic pain illnesses.  1 was enough!


On days when I need to be extra strong for my loved ones, like during our many hospitals visits,
I often feel like I am falling short because I am suffering so much myself.
It often feels like by the time I deal with what's happening on the inside of me,
I just don't have enough energy left to deal with all the crap that's going on on the outside of me.
I worry I am not giving enough to others and I am really struggling with that sense of weakness.
Especially since my husbands cancer diagnosis. I feel like I have to be stronger than ever before
but the truth of it is, I've never ever felt so weak in my whole life.


BUT all that being said, I am also feeling quite uncharacteristically unapologetic.
I have been zoning in on my priorities because I have to shave the nonsense away.
I am concentrating on; taking care of me, my family and my art business (because it's been put on the back burner the last year or so and that's not feeling okay with me whatsoever, I believe in my work).
Since my loves cancer diagnosis and since my own diagnosis's,
I can now more clearly focus on what's important in my days &
I am finding I can let the shit go easier, either that or I am just not putting myself so near it anymore!
There's a streamlining of priorities happening & that's a really good thing, a silver lining if you will.


And because of it, the streamlining I mean,
I have been able to find just a smidgen more energy to give....
to myself, to my loved ones &  to my business...
it's happening, there's movement and that's heartening.
It's still hard...some days are harder than others.
Because when I open my eyes to just how debilitating each of these diseases are all on their own,
let alone together, sometimes all the facts push me down, wayyy down
& it takes me awhile to crawl my way back up again!
BUT it's all a 'work in progress' & I am happy to share my struggles along the way.

Thursday, March 12, 2020

Migraine World Summit Whoot Whoot

Guys guys...the 2020 Migraine World Summit has started.
(well the opening talks with guests Witney Cummings & Olympian Amanda Beard are tonight
but the other videos begin next week on the 18th)
I took in all the info last year and it was so awesome...
it's 8 days of talks & info from world leading migraine doctors and specialists.
I tuned in online last year & I was amazed by how supported I felt, because usually I feel very isolated with this chronic neurological disease and this year seems heavy on the stigma of living
with this invisible disease which I think will be really important information to get under our belts.


If I disappear on you this week, it's because
a) my honey is getting really sick from his treatments now
and b) I am busy taking advantage of all the info from the Summit.
I hope any migraine sufferers out there will check it out,
it's a super empowering event for a super debilitating disease.
I did miss quite a bit of the days last year because I was stuck in bed with a migraine BUT
they have all the videos accessible for free online for a few days after they are posted,
so you don't have to rush too much.  I highly recommend not missing the opening talks
which I am currently listening to but not necessarily watching, as I lay on my studio floor with
our sweet Lydia, as I nurse another migraine!